This has been hard
This has been hard. I’m only 4 months and 22 days removed from having the back of my head split open from Chiari Decompression surgery. There were a couple of weeks in May that were easier than others where I felt like I was healing and I was going to be OK. It felt like the symptoms that I suffered with before weren’t going to come back. When people asked me how I was doing I’d say, “I think it worked.” Well, now I just think it is better, but not fixed. But I still don’t really know. I have intense fatigue that usually sets in with a pain episode. When the fatigue sets in I can barely keep my eyes open. This usually happens at least once a day – usually mid-afternoon. I try to compensate with it by having caffeine, but I feel like that just delays the fatigue and makes my body react in other negative ways. I lost a bunch of weight after the surgery. That was mainly due to the fact that I just couldn’t eat much. My esophagus was in bad shape from being intubate