Showing posts from June, 2017

This has been hard

This has been hard.  I’m only 4 months and 22 days removed from having the back of my head split open from Chiari Decompression surgery. There were a couple of weeks in May that were easier than others where I felt like I was healing and I was going to be OK.  It felt like the symptoms that I suffered with before weren’t going to come back.  When people asked me how I was doing I’d say, “I think it worked.”  Well, now I just think it is better, but not fixed.  But I still don’t really know. I have intense fatigue that usually sets in with a pain episode.  When the fatigue sets in I can barely keep my eyes open.  This usually happens at least once a day – usually mid-afternoon.  I try to compensate with it by having caffeine, but I feel like that just delays the fatigue and makes my body react in other negative ways. I lost a bunch of weight after the surgery.  That was mainly due to the fact that I just couldn’t eat much.  My esophagus was in bad shape from being intubate